How can we improve patient-centered care of motor neuron disease?

A Hogden; C Paynter; K Hutchinson

Journal article

How can we improve patient-centered care of motor neuron disease?

A Hogden, C Paynter, K Hutchinson

Neurodegenerative Disease Management | FUTURE MEDICINE LTD | Published : 2020

DOI: 10.2217/nmt-2019-0031

Abstract

This perspectives paper discusses patient-centered care for people living with motor neuron disease. We identify challenges and offer solutions from the patient-centered care literature for this population in frontline care, service delivery, research and health system organization. Examples from Australian and international motor neuron disease care are used to illustrate interrelated issues for practice and policy.

University of Melbourne Researchers

Camille Paynter Author

Related Projects (1)

COMMUNICATION, QUALITY OF LIFE AND ADVANCE CARE PLANNING FOR PEOPLE WITH MOTOR NEURONE DISEASE AND THEIR CAREGIVER

People with motor neurone disease experience devastating deterioration in movement, communication, swallowing and ultimately breathing. Rese..

Grants

Awarded by joint NHMRC/MNDRIA postgraduate scholarship

Awarded by National Health and Medical Research Council of Australia

Funding Acknowledgements

C Paynter is funded by a joint NHMRC/MNDRIA postgraduate scholarship (No. 1133541). The authors have no other relevant affiliations or financial involvement with any organization or entity with a financial interest in or financial conflict with the subject matter or materials discussed in the manuscript apart from those disclosed.